Commentary: Giving the gift of life should not be a matter of wealth

by Elaine Perlman

When I gave the gift of life by donating my kidney to a stranger back in 2020, I followed in my son’s footsteps.

Six months after my son donated his kidney at age 19 to a 21-year-old stranger (who we found out has now finished college and is expecting a baby), I donated mine and launched a kidney chain for four people to receive life-saving kidneys, just one month before our COVID lockdown.

For organ donors, the physical sacrifice is obvious. But why do donors also endure a financial hit when living organ donation saves both lives and so much taxpayer money?

Earlier this year, both the state Senate and Assembly unanimously voted to pass the Living Donor Support Act . The act would provide for state reimbursement of medical and associated expenses to living organ donors who are state residents when they donate an organ to a person who is also a resident of New York. If Gov. Kathy Hochul signs the bill, New York will become the first state to reimburse organ donors’ costs and lost wages.

Currently, only 8 percent of donors are reimbursed for expenses and lost wages. For those who do not have money to spare, that financial burden stops them from donating.

In the words of one construction worker I spoke to who wished to give his kidney to his father, “I have to choose between going into debt or saving my father’s life.” Because we cannot lift anything heavy for six weeks post-surgery, that potential donor would have to live without pay during the recovery time.

In addition to saving lives, organ donation also saves money. For example, when people get new kidneys, this generates $146,000 in savings to taxpayers and $1.1 million net welfare gain to society compared to dialysis. The Living Donor Support Act would increase living organ donation in New York by 20 percent, saving an additional 140 lives each year, as well as $14 million for state and federal taxpayers annually.

This cost savings does not factor in an additional financial benefit of transplantation. Every time an organ is transplanted, the recipient has the potential to go back to work and return to being a taxpayer. Some 7,000 New Yorkers are languishing on dialysis 12-30 hours each week, which has been described as a “living death.” Most will not survive long enough to receive a transplant.

At current donation rates, just 1,500 New Yorkers will receive an organ in the next year. Of the remaining 5,500, around 400 will die in that year. Black New Yorkers, who constitute 18 percent of the state population, will make up 36 percent of these deaths.

Nationally, 17 Americans die each day while waiting for a life-saving organ transplant. Every 10 minutes, someone joins the organ transplant list. Over 3,000 new patients are added to the kidney waiting list each month. The need for organs is growing, but donors cannot donate if they cannot afford the costs.

Those who step forward to donate will provide their recipient with a living organ that lasts twice as long as one from a deceased donor. With our current system, only the more affluent among us can give that gift of life. Passing the Living Donor Support Act is an important step in dissolving barriers to organ donation.

New Yorkers should urge Hochul to sign this bill when it comes to her desk, and make New York the country’s best place to donate organs.

Elaine Perlman

Elaine is aiming to pass two federal laws in the United States, the End Kidney Deaths Act and the Honor Our Living Donors Act. Elaine is the Executive Director of Waitlist Zero, an advocacy group that seeks to end the kidney shortage and provide kidneys to the 90,000 people who are waiting for their lives to be saved in the United States. Both Elaine and her son Abie gave their kidneys to strangers. Elaine founded the groups NYC One Kidney Club, Kidneys 4 Strangers, and Vegan Kidney Donors. She leads the Global One Kidney Club meetings and the Ask Me Anything meetings for the National Kidney Donation Organization. She is also on their Mentoring Team. Elaine cohosted an National Kidney Foundation workshop about the benefits of plant based eating to promote kidney health in addition to a cooking demonstration. Elaine has been a mentor for Plant Powered Metro New York during nine Jumpstarts that help people make the transition to plant based eating.

From 2016-2022, Elaine was a Professor and Program Director for the Peace Corps Fellows Program at Teachers College, Columbia University. For 30 years, she has been a teacher of nearly every subject for all grades from 2-11, in addition to 7 years of teaching children under the age of five. Elaine was a public school specialist teaching children in grades 2-5 about eating healthy foods in the South Bronx, Crown Heights, and Harlem through the Coalition for Healthy School Food. Elaine has painted eleven school murals. She completed the Columbia University course "Food and Nutrition For All," the Plant-Based Nutrition Certificate course from the T. Colin Campbell Center for Nutrition Studies and eCornell and the Main Street Vegan Coaching Certificate course.

http://elaineperlman.com/
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